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They counted the number of the f2f self-help groups that exist for the target disorders in each of the four large metropolitan areas. They contacted each group to get the frequency with which the group met and the average attendance size of the group. They counted contributions to online bulletin board forums (on AOL and the Internet) devoted to the same twenty disease categories used in the f2f survey. Attendance was lowest for heart disease, hypertension, migraine, ulcer, and chronic pain. Diseases viewed as the most embarrassing and stigmatizing had the highest rates of self-help group participation. The results of this study of online self-help groups showed that chronic fatigue syndrome had the highest activity level of the Internet groups, and multiple sclerosis had the highest activity on AOL. Combining both the Internet and AOL activity of the online groups, the top four disorders, listed in order of participation are multiple sclerosis, chronic fatigue syndrome, breast cancer, and anorexia. The authors explain these results by stating that “virtual support can be very attractive to those whose disability impairs mobility. It is particularly useful for people with rare conditions, who cannot get together physically. Alcoholism was ranked the eleventh most prevalent type of group online. Ed Madara, then the director of the New Jersey Self-Help Clearinghouse, wrote about a weekly online text-based conference taking place on CompuServe. They used the computer conference to offer each other emotional support and practical information. He used a Braille keyboard to enter his messages, and an early version of a text-to-audio software program to hear replies from other members of the group. This may have been the first online self-help group. Madara wrote at that time what turned out to be a very prophetic statement about the experience; “embarrassing to talk about” (Madara, 1984).

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